Showing posts with label mental health. Show all posts
Showing posts with label mental health. Show all posts

Monday, 28 January 2019

Is this real life - or just fakery ? (with apologies to Queen)

At some point faking it became ok. Actually not even just ok, but aspirational. False nails. fake eyelashes, those weird big eyebrow things, botox, fillers - well you get my point. It's absolutely fine to pretend to be something you're not - visually. If you want to be a blonde you bleach your hair. If you want to have long hair you can get extensions. If you want to be a celebrity you go on a TV show and make an idiot of yourself. It's always been ok to fake that you're ok. I've done it for years.

Not long after my first marriage ended I was taking a course in psychodynamic counselling and it was tough. I held it together while worrying about how to pay the fees and whether or not I could cope with the mind games that the tutors would play on us students. On one occasion the entire room turned on me and I broke down in tears. The woman who had led the onslaught jeered that I was faking it for attention. In my supervision with the tutor I said I had been shaken by this. He told me it was probably because, "You give the appearance of being bulletproof." I looked at him in disbelief. "No one is bulletproof. How can anyone think it's ok to do that ?" I never went back to the course. I couldn't face it. Also I had to deal with this characterisation of me as this ice maiden with no feelings and no capacity to be hurt. 

Years later I worked for a man who clearly didn't like me. I was always polite to him and offered to make tea and joined in with the boyish chat in the office, but it was pretty awkward. In a meeting with him one day he told me, "You're a fake." I asked what he meant by that. "You pretend to be ok when you're not. You smile and make tea and it's all fake." It was like a kick in the belly. How dare he call me a fake ? I was offended. However, when I thought about it he was absolutely spot on. Of course I was faking it. How could I not be ? No one is happy and cheery all the time. It isn't possible. I was making the best of things and ensuring the office atmosphere wasn't unpleasant and frosty. I worked with some alpha males who would 'banter' and practically chest bump their way through the working day. I couldn't join in with that. I didn't want to. 


So why did it bother me being seen as fake ? I'm not sure being real was an asset I wished to cultivate. Being real just didn't appeal. My messy, out of control, unmedicated self just wasn't safe to unveil at work. In what possible way would it be of benefit to be myself ? I was used to having to pretend to be ok. To not be unhappy, or angry, or anything other than polite and friendly. After a while it becomes the way you see yourself, so when the mask slips you are just as shocked as anyone else. I have had entire relationships based on the image of myself I wish to portray. The kind and generous and lovely person I want to be seen as. Not the flawed, angry, unreasonable, unremarkable person I really am. 

One the years I found ways to manage the unpalatable - running, swimming, going to the gym. I would pound the treadmill, lift weights, do whatever it took to  unfetter the badness. When I swim I process all the unpleasant thoughts I can't have on dry land. I furiously work out why this rubbish thing has happened and keep going until I am physically too tired to do any more. People have asked me how I can run for hours without any music to listen to. Well in yoga we use the term 'monkey mind' for those random thoughts that just keep flitting into and out of your head: 

- I've got to cross the road there - maybe I can do it without pressing the light

- Oh that's the shop where I went it for a tissue once

- Isn't that the dog that lives two doors down from Jill ? 

- Next time I go to the theatre I can leave my car there. 

- The hedges are all trimmed back - when did they do that ? 

There is so much going on in my head that I just don't need music. It gives me space to work out how to deal with things that I can't give my time to otherwise. Often I get home shattered, but feeling better about something that I was upset about earlier. 

It's really only been in the last year that these two worlds have collided. The one inside my head and the one outside. The mask of "I'm ok" "Like me I'm nice" has melted away and it's like I'm standing yelling into an abyss. No filter, an overwhelming sense that things are out of control and a startling inability to manage my own emotions. It's like 40+ years of crazy have just escaped and I now can't get them back inside the bottle. 

I'd give anything to be able to go back to before it was all out there. The "No, I'm not ok actually." "Yes this is me in all my crappy and unpleasant glory." I've been all, "Leave me alone ! Why are you ignoring me ?" A bit like Olivia Colman's Queen in The Favourite when she chastises a valet for not looking at her then for daring to look at her. You think it's a pain to be on the receiving end of it ? Well it's no picnic on this side - believe me. 

There is no reward for sharing the bits of yourself you don't like. I think I preferred when it was ok to fake it and I thought I was getting away with it. 


Wednesday, 26 December 2018

I'm letting it all go

Wow, it's almost over. This year has been so long and so difficult and so very painful for many reasons. You will have noticed I haven't posted as much as I usually do. Partly that was due to my emotional state and partly because my MacBook came to the end of its days. I have new, shiny and absolutely beautiful kit (hence I am typing now) and it's time to deal with the other thing too. 

I started the year on a high having had a fantastic skiing holiday with the boys and an almost stress-free Christmas. I don't enjoy Christmas. I wish I did, but I just don't. If I could just not take part it would make my life so much easier. Then a few days into the new year as I was driving to Lewes to do my first radio show of the year I found out my friend was ill. I had no idea how serious it was at that point. Then she died. I didn't know what to do so I went into doing mode and have been in that ever since. 

A lot of things fell by the wayside when this happened.

I stopped teaching yoga, then I just didn't practise yoga either. I also didn't meditate. I haven't been sharing my skill and I haven't been benefiting from it myself. 

The garden hasn't seen me at all. I love my garden and I haven't set foot in it all year. 

I've gone from someone who holds it all in and puts on a brave face to giving in to all my emotions all the time. I have apologised for my feelings more than I have ever known. I've been a wreck and yet I'm the one saying sorry to others for daring to not be ok so I can protect their feelings. This self indulgence has become boring to me and - I am sure - other people. 

The realisation has hit me that I really cannot rely on anyone else to take care of me. My well being is my responsibility. More than once this year I have been promised some support or help and it just hasn't materialised or it's been taken away from me at the last minute. If I want to to get a break it's up to me - no one else. 

I've been ill over Christmas. I have had to lie down and rest. It's given me time to think about what I should do next. 

So, I'm letting it all go.

The grief

The sadness

The fear

The need to apologise for my feelings

The relentless search for reasons. 

That is enough. Time to pull up the braces and roll up my sleeves. This is done with now.

I'm putting the brave face back on - no show of weakness means no risk of being taken down. 

The only way I can get better is if I protect myself. 


Thursday, 20 December 2018

What are you doing for Christmas ?

I have been asked this question literally every day this week. Mostly by well meaning individuals and colleagues. I am baffled by it though. It is one day of the year. It's one meal and yet people go on a diet for it. They go into debt and seem to go loco about it. I just don't get it. I have had a cough for over a week and a few people have said. "oh you don't want to have that for Christmas." Really ? What difference will it make ?

Ok, to be clear I am not bah humbug about Christmas and I don't have any problem with it. I just don't get why it's such a big deal. Why people eat so much food, why they spend so much money, why this one day is so significant. I get it if you have a faith and it means something to you in that regard, but if it's a celebration of food and presents then that is just beyond me. It's not cultural. I grew up in England and my parents always celebrated Christmas. It wasn't the biggest day of the year for us though. 

In some ways I do envy people who have that whole excitement about it all. The family side of things, the social side, the dressing up, the presents, I do get that. Brown Bear was only 3 months old for his first Christmas and our house was filled floor to ceiling with presents for him. He had absolutely no idea. I dressed him up as Santa and we took him to visit my parents on Christmas Eve (my Dad's birthday) and then Hubbie's parents so they all got to see the baby for his first Christmas. 

Now I am a parent I do like to make a fuss of the boys and to get into the whole spirit of the thing. We go to see Santa, we have a roast dinner at home, we have presents. However, we don't fill the house with tangerines, bowls full of nuts or masses of sweets. I will confess I have three fruit cakes bought at the school Christmas fair, but that is because the TA who made them has form and her cakes are absolutely amazeballs. 

Don't get me wrong there is no deep-seated trauma or childhood memory behind my lack of enthusiasm for end of year festivities. It is all tied in with anxiety and depression that always reaches a peak around this time of year. I know I'm not alone in that. The enforced socialising and jollity is just too much to take for some of us. I'm not saying anyone else shouldn't have a good time. Just don't expect me to be as enthused. I can't do it. 

It is this expectation of plenty that makes me uncomfortable. This year we have donated toys, food, clothes and I also gave a bag filled with make up from my days as an Avon lady to a refuge that requested gift items for the women. People donate to the children in refuges, but seem to overlook the women. At a time when it seems that we are being pushed into spending money and eating too much I am painfully aware that there are people who are struggling to manage to basics. 

We have enough and for that I am so very grateful. I have made it to the end of this year a significantly different woman from who I was this time last year. So much has altered in my life and for people I care about. It isn't a time of celebration for me. It is a time of gratitude. I am thankful.   

I have friends who will be experiencing their first Christmas without a partner, a parent and in the case of my brother in law his first without either of his parents. In my family we will spend time together knowing that we are so very lucky to have each other. My gorgeous baby niece will have her first  Christmas and Blue Bear and Brown Bear will fuss over and spoil her rotten.

The other day I found a post I had written in December 2009 when we were childless and desperate to be parents. It was titled, "Christmas is for kids." I had no idea how prophetic that would prove to be. Less than a month later I found out I was pregnant and the following Christmas we had our much longed for baby son. The point is nothing is forever. It's just a moment in time and that will pass. I won't stop having anxiety or depression, but I won't feel this way forever either. 

If you struggle with Christmas please don't suffer alone. Here are some organisations that will be open to help if you need it: 




Sunday, 3 June 2018

Got my work shoes and a packed lunch all ready to go

I was queuing at the till this afternoon to pay for my shopping. I decided that as it's my first full week in my new job I was going to be well prepared so I bought all the food I needed for lunches, breakfasts and any snacks. The boys were at home lounging in the sunny garden having returned from cricket and we had all been for a fun swim earlier in the morning. In the queue I noticed a man behind me who had only two items to pay for. I asked it he wanted to go ahead of me and he looked a bit surprised, but thanked me and moved forward. The woman in front of me was frantically packing her shopping, she had already rolled her eyes and castigated her husband (who had disappeared now) and was clearly not in a good mood. The man in front of me stood next to her waiting his turn to pay and she looked at him and sharply asked him to move away so she could put in her pin number.  He was quite elderly and didn't really understand so I gently took his elbow and explained that she wanted some privacy to put in her number and he mumbled something. She swore at him and he looked baffled. It brought me up short, because I can remember days when I have been like that. I've not been patient or especially nice and it's embarassing to see in another person the rotten behaviour I've probably displayed myself. 

This was on my mind because we just had a half term holiday in Cornwall where we spent time relaxing, eating outside, being active and generally doing things as a family. I have tried to manage the worst of my moods and temper, which is much easier when it is sunny and now the boys are older they even sleep in sometimes !! I noticed Blue Bear has more energy, he asserts himself more (well he shouts a lot), he is funny and engaging and lots of fun. Brown Bear blew my mind when we all went on a long cycle ride by being brave and sensible and working as a team with me and hubbie. I have wanted to ride the Camel Trail since I first visited Cornwall about 18 years ago. Now that Brown Bear can ride a bike confidently we hired bikes - and a buggy for Blue Bear to sit in behind Daddy's bike. We took to the trail and it was just fantastic to be able to cycle as a family and to see my son pedalling away and taking the lead. Even when he came off his bike and scraped his arm - quite painfully - he got back on and kept going. I recalled how when I fell off my bike my dad would tell me off rather than comfort me. It showed me that some of my worst traits are learned behaviours and it is entirely my choice to take them on. I didn't tell him off, I reassured him that falling off is part of cycling and he had done nothing wrong to make it happen. Then we sang as we cycled along to take his mind off his injury. 



I noticed that I'm letting go more and giving the boys more space. It's been on my mind that the shift from full time parent to full time work is something I just wasn't prepared for. The boys are great, they love creche and hopefully Blue Bear will eat supper at school this week instead of expecting me to feed him when I'm home from work. Brown Bear often asks me, "How was your day Mummy ?" and made me a certificate to signify how well I'd done for going back to work. They are fine with it. Hubbie provides the encouragement and practical support to enable me to do this at all. On my first day as I was leaving for work he gave me a massive hug and whispered in my ear, "I'm so proud of you." That carried me practically all the way there. 

It's taken what seems like forever, but now I am here and I have put things in place to help me feel calmer. I disclosed to work that I experience anxiety and stress. This is the first time I've ever done that. I decided it was best to just be open and I'm glad I did. They need to know that if I am being asked to stay late and it means I can't pick up my kids that is going to cause me anxiety. Being late for my children makes me stressed. Over the years I realise that people have thought I'm being unreasonable or picky when actually I'm anxious. It's not logical or directed at anyone in particular and to a certain extent it is out of my control. If I am on a train that is delayed I will be getting anxious - even though there's nothing I can do about it. If I have an hour for lunch and the food is late I will be anxious. I'd rather just leave it, but I don't want to be rude. 



So when I saw the woman today I kind of sympathised with her. I have no idea why her day was going that way or why she was upset with her husband or why him changing the orangeade for lemonade caused her to react as she did. I have no clue why the man standing close to her caused her to get so upset. In fact, I blamed myself for letting him in front of me and putting him in that situation. Still, I hope she felt better later. 

I came home and put out four outfits for this week. I organised the things I need to take to work and put the food in the fridge that I am going to eat tomorrow. I am managing my potential anxiety in the only way I know how - by organising the hell out of it. Now I'm going to bed so that I at least have a fighting chance of getting enough sleep. 



Monday, 14 May 2018

Welcome, come on in, the kettle has just boiled.


Inside my head is a busy and often confusing place. Some days I wake up and things are fine. Things are going ok then something ever so minor will cause me to feel bad. That feeling will stay with me all day. I might not even recall what it was that caused the feeling, but it will be there.

Other times getting up will be an actual struggle. Physically I will feel heavy and immobile. My head will barely lift off the pillow and my body will shiver at the thought of moving. When I do get up I will be clumsy, uncoordinated and more than a little cranky.

The days when I bounce out of bed are almost worse. Everything will be done in record time. The house will look spotless and I will be moving constantly. By the time the boys come home I will be worn out, but I'll keep going anyway. My fitbit is pretty much overheating and I'm far too wired to sleep.

It's not always possible to know how someone will react when you open up about mental health. I was careful for over 30 years to not share with anyone in case they judged me for it. I kept up the facade of being cheery and 'normal' so that no one would know there was anything wrong with me.  The quiet challenge of keeping myself together was tough and required more strength than I thought I had a lot of the time.

Then I spoke up on this blog and it felt safe to say that I'm not ok a lot of the time. It's taken far longer to realise that it doesn't make me 'mad' and that I don't have to be ashamed. I still don't talk to my family about my mental health. They have experienced me in the worst of it, but it just doesn't feel like something I can do.

This year has been exceptionally difficult in terms of my mental wellbeing. In addition to the ever present depression and anxiety I've experienced bereavement which has knocked me right off my feet. I tried to talk to real life people about what I was struggling with - some of them were there with me, in the same state of grief. In this big shared space of sadness I found others who knew what it felt like too.

When people have been kind or praised me I've dismissed it as, 'well they obviously don't really know how horrible I really am.' After all what do they know about the 'real' me ? This was reaffirmed when I opened up to someone I've known for many years. I made the difficult and terrifying decision to talk to them honestly about my mental health. It wasn't the right thing to do. All my fears of rejection and being judged and despised for not being 'normal' were proven right. It reminded my why it's not safe to tell the truth about what goes on inside my not quite right head.

Even after all these years I really don't understand why I am like this, but the people who matter accept me. They are there for the times when I'm on good form and for the times when I'm a mess and can't cope with anything. There are dark days and even darker thoughts, but I know I am not alone.

In that I am very lucky.

I don't recall ever sitting down with Hubbie and saying, "here is what's wrong with my head." One day he said something that made me realise he was on my side and he wasn't afraid. That made it possible for me to feel less afraid too. He works around whatever is going on for me and if he sees I am struggling he finds a way to tell me he has noticed. It is such a relief to have an ally who isn't judging or trying to 'fix' me. He holds me metaphorically and literally through the worst of times and is with me for the best ones.

If I could make one thing happen during mental health awareness week it would be to take away the stigma and fear. Even if I could just do that for the people I know that would be something wouldn't it ?



Mental Health Awareness Week is from 14th-20th May 

www.rethink.org.uk
www.mentalhealth.org.uk
www.mind.org.uk
www.samaritans.org.uk





Sunday, 15 April 2018

I love you, but get out of my face before I punch you in yours.

I admit it's not a mantra that will rival anything by Rumi, Khalil Gibran or His Holiness the Dalai Lama. It's just that sometimes I have that Edward Norton in Fight Club vibe. No not the urge to steal women's thigh fat to make soap - and eww if you thought that !! I mean the fantasy where you punch someone to a pulp - not in a toothless and puffy faced Jared Leto, "I had to destroy something beautiful" way. Despite talking it up I am actually non-violent in my actions. So the intense feeling of wanting to punch and hit is not something I have ever acted upon.

I'm grateful that there is a movie that can vicariously deal with these emotions for me. It's important to be able to park feelings in a safe place when we can't deal with them. It's not always possible to 'resolve' difficult emotions so to be able to watch a movie and sob or laugh or grit my teeth in empathy with the characters is the next best thing to fixing it.


I've been reading about a Hindu goddess whose existence is all about being broken and growing from that brokeness. The idea is that in our lowest moments lie the seeds of great growth and personal development - I'm not sure about that, but I am pretty sure that feeling bad isn't going to kill me. I might find myself swearing or shouting at nothing in particular or in fact everything in the understairs cupboard that fell on me while I was trying to put some stuff away the other day.

Depression doesn't mean being down all the time. It may not even mean being sad a lot of the time. For me it often means being very angry for no reason at all. Being fine one minute and losing it the next over something so entirely meaningless that it's embarrassing.

Me: "Put your socks on boys."
Brown Bear: "..."
Blue Bear: "In a minute Mummy."

5 minutes pass

"Put your socks on now please."
Brown Bear: "..."
Blue Bear: "In a minute Mummy."
Me: "NO NOW !!"
(there follows a 2 minute rant at full volume)

See what I mean ?

It's not even being a bad parent, although on the evidence above you could be forgiven for thinking that. I worry that my sons may inherit my irritability and not be able to control their moods or lose their temper at absolutely nothing. I fear what they think when they witness it and do my best to hide the sadness and badness. This means they're not seeing the real me very much.

I don't mean to be ungrateful or unappreciative. Of course I count my blessings and I realise that there are so many people worse off than I am. That just compounds the belief in how bad I am for not being able to be happy when I have so much to be thankful for. 

Agood friend of mine was a 'functioning alcoholic' and I suspect I'm a 'functioning depressive' ie. I do the day to day stuff, keep house, make meals, take care of the boys and even manage to hold a range of voluntary roles. Surely depression means not being able to get out of bed ? Well I can get out of bed - slowly, but still. There are days when I am already worn out before I've begun the day, but I usually manage to function enough to make it through. I collapse at the end of the day going through in my mind all the bad things that I have done that day that make me a bad person.

I make myself do the things that I think a 'good person' would do. I mimic what I think a good person is. It never occurs to me that the mythical good person that I'm being might do the same. I believe that if I were genuinely a good person I would just do nice things without thinking, "Oh look at me aren't I a good person doing this good thing?" That reminds me that I'm not really good after all. 

It's not always possible to dismiss bad thoughts or feelings and when other people remind me of my faults it reiterates how awful I am. I'm doing my best. It clearly isn't good enough. It's as if I'm not in control of my emotions. I've been feeling massive waves of grief. Earlier in the year I mentioned to Hubbie how I was really surprised that I was coping without breaking down. I had no idea it was waiting there for me. Just biding its time.


Hubbie was away overnight earlier this week and when the boys were asleep I was sitting on the sofa with Neo scrolling through facebook (me, not him). I saw a memory where I talked about taking part in the Moonwalk with Soraya and she had made a lovely comment. A few minutes later I was wracked with sobs and unable to stop myself from asking, "Why her ? It's not fair. It's just not fair."

This evening I was listening to Ruby Wax on Radio 4 talking about mental health. It's gone from being a topic that was never ok to discuss to being pretty much everywhere. I still feel odd talking about it. Not least as I worry the person I've told will use it against me. I've never talked about depression or anxiety with my family even though they have been directly affected by mine most of my life. Hubbie is the exception and I'm already trying to find age appropriate ways to talk to my sons. I want to reassure them that my outbursts are about me and not them.

I haven't watched Fight Club in ages. I haven't metaphorically kicked anyone in the head in a while. I run and swim to manage my moods. I make sure I eat regularly and drink plenty of water to keep well. This weekend we all spent a sunny afternoon in my parents' garden while the boys played with their cousin. As we were all there we bribed the boys with ice lollies and cake so they would sit still for photos. It was such a lovely family moment and yet I felt as if I was watching it all from behind glass.

At this point it is hard to believe I'll ever feel 'normal' ever again. It's like my head is under water and every so often I pop up to catch my breath. In those brief moments it seems possible that things will get better. All I have to do is keep having those moments and notice them.




Wednesday, 27 December 2017

So that was Christmas

And what have you done ? To misquote John Lennon. I only ask because not everyone is all singing and all dancing about Christmas.

It's taken me most of my life to work out how to do Christmas in a way that doesn't make me stressed or upset. Mostly it involves a lot of organisation. It's also about getting myself prepared mentally. Ok, so the present buying and food shopping is pretty arduous, but it's still a fortunate situation to find yourself in. To have the means, the reason and the people to buy for can be wonderful. It can create a mass of expectation though. The need to buy the perfect gifts, to cook the perfect meal, to have the perfect family get together. All the while being aware that this is a privileged position to be in.

The pursuit of perfection is my worst enemy. The desire to do everything just right causes the most anxiety of all. It's why so many people get into debt to fund Christmas. This need to make it special. I didn't even grow up with the traditional notion of Christmas in my family. We weren't encouraged to believe in Father Christmas so that wasn't a thing and apart from having crackers with our meal it was no different to any day that we all ate together. We did have gifts, but it was not the huge deal that I became aware of later on. When people talked about how special Christmas was I just didn't get it at all.

At uni I met a tutor who told me that she and her husband would go on holiday every Christmas to avoid all celebrations. They would lie on the beach and ignore everything to do with the season. That idea appealed to me. Choosing to step away from the whole idea in favour of something relaxing instead. Yes please. Then the guilt kicks in. What will parents think ? Isn't that a bit selfish ?

It's this awareness of unrealistic expectations that means I start to prepare a long time in advance. Getting myself fit and mentally well has been hugely important. In the past I have negelected my wellbeing and it's led to a miserable time. Now I know that I have to manage myself. Whether that is taking some time for myself or sharing the load with others. No one else can know what I'm struggling with if I'm not open about it. Fortunately Hubbie knows me better than I know myself sometimes.

It's not an easy time of year for a lot of people. It's ok if you're not feeling festive. If you do and you need some help these links might be of some help:

www.mind.org. uk

www.samaritans.org.uk



Thursday, 26 October 2017

Is this it ?

I think of myself as the hardcore parent in our family. The one who lays down the law, sets boundaries and follows through with consequences. However, this week I've seen this challenged and I feel a bit deflated. Brown Bear has surpassed his usual levels of self-importance and taken to just completely ignoring me. Blue Bear, however, has been with a childminder who told me he is a 'real pleasure to look after.' He has been playing with older children and growing in confidence by the day.   When I got him ready to have a bath last night he told me he could take off his t-shirt by himself and demonstrated very ably. Brown Bear, however, spent more time just doing his own thing and searching for TV programmes I'd asked him not to watch. By the time we all woke up this morning he was overtired and grumpy. As a result I was too.

I don't do well when I'm tired. I shout even more than usual and make ever escalating and insane threats. By the time I dropped him off at half term camp at 9am I had taken away the chance of going to McDonald's ever again, given all of his birthday presents to charity and banned all of his favourite programmes. It wasn't my best day. I came home from dropping both boys off and had something to eat. I felt better. If I'm running on empty I can't do this. It's not rocket science, I know, but sometimes it feels like I just don't know anything. 





Talking to another parent yesterday afternoon after a day spent with 'not my children' doing fun outdoor activities I wondered if my expectations of my children are too much. Maybe it's enough that they are happy, vibrant, funny and independent. It doesn't follow that they will also be good listeners, tidy or able to be together without duffing each other up. I have to get past thinking that everyone is looking at me and thinking, "wow she's so useless, her kids just don't sit still and listen."

Today has been a low point. I've shouted, misdirected my anger and broken down in tears. I've also upped my dosage in order to deal with my own emotional state. It might not help, but it can't make things any worse. I need to have something other than this anger and feeling of uselessness. Being mum is just not enough right now. I'm sorry.  


Wednesday, 26 July 2017

Kindness is not optional

I'm very annoyed. Not in the usual, oh the kids are playing up, Hubbie is getting on my nerves, why is there no milk left for tea way. No, this is a serious, deep-rooted and heartfelt anger at something that I cannot fathom the reason for. Why are some people weird about autism ? What is it that makes these people act in a way that under any other circumstances would be considered unacceptable ? I have specific examples of this that have happened in the last 48 hours.

Yesterday I spent the whole day with fellow bloggers visiting Winchester - there was a lot of walking involved. I know my blogger pal fairly well and have met some of her children. I didn't, however, how that one of her boys is autistic. I have met him - albeit briefly - and it wasn't something that was obvious to me or that would have been an issue even if it was. So when she told me he's been excluded from a friend's party and that other children don't come to his birthday parties I was so angry. I just don't understand why other people's discomfort is paramount in treating a child this way. Ok so he might not eat the same food as the others so he will bring his own. He might prefer not to take part in all the activities, but that's ok isn't it ? Why choose not to invite him rather than try to meet his needs so that he can participate ?

We have friends whose son has sensory issues and they are currently looking at whether or not he is on the autistic spectrum. We have known them and him for many years. While Brown Bear would dearly love to invite this boy to his birthday party we have spoken to his parents and they have told us he wouldn't enjoy it and it would be a struggle so we arrange to have smaller one to one play dates instead. My boy and theirs play side by side and if he needs space he goes and Brown Bear leaves him to it. We respect their advice on how to best be around their son and we talk to our sons about what we have planned so they know what to expect. I don't consider this to be difficult to do, but clearly other people struggle with it.

Then today when I went swimming at lunchtime one of the women who I see there all the time was in a grumpy mood. I asked if she was ok and she said, "No, I'm not actually." and proceeded to explain why. It was a petty minor thing so I sympathised and then got on with my swim. An hour later in the changing room she was still in a mood about it and was carrying on about how this young man in the pool had really upset her by jumping in and it had upset her so much. I nodded and said, "I'm sure he didn't mean to upset you." She was determined to be upset about this and carried on. Then she made a comment about him along the lines of, "Well he has autism doesn't he ?" That did it. I was not taking that and said, "What does that have to do with it ?" She went on to say he should not be working there if he had, 'health issues," and I told her that was inappropriate and not to continue down that line. I know this young man and his parents, I teach his mum yoga. When she told me her son with autism worked at the pool I had no idea who she meant for ages. I wasn't looking specifically for him, but I can honestly say he doesn't have any obvious mannerisms or behaviours that would mark him as different at all. It surprised me that this woman would mention it at all as it was irrelevant to her complaint.

When I spoke to his mum later she told me he had apologised to the woman - even though he had done nothing wrong at all - and she still made a big deal about it. I am beyond annoyed at the woman for thinking she had a right to suggest he shouldn't work and that he had behaved incorrectly because of his autism. I know that he is fully qualified to do his job and that he has all the support he needs to ensure he can manage that job and from seeing him at work most days I also know he has a great rapport with people. Her having a bad day is no excuse for this sort of scapegoating. However, the use of mental health to justify downright ignorance is rife. I often hear people use terms such as, "a bit OCD," when what they mean is fussy. Or they will refer to someone as, "on the spectrum" when what they mean is they are socially awkward or just not their cup of tea.

Being considerate and thoughtful is one of the qualities I really want to instil in my children. That means to all people, not just those who look or act like them. If I meet someone who makes me feel uncomfortable do I just choose not to have anything to do with them to make it easier for me ? Well if I feel threatened by them in any way I might do that, but my preferred mode is to see what we have in common. I was leaving Waitrose with a big cup of tea the other evening and I saw a woman sitting on the ground with a thin blanket, but no jacket or jumper on. I thought about it for a few seconds then went over and said, "do you want a cup of tea ?" She smiled and thanked me. I apologised that I hadn't got any sugar and she said it didn't matter and wished me a lovely evening. I don't know her. I don't know anything about her. In that moment she looked like she needed a hot drink more than I did.

Isn't being kind the right choice every time ?


Friday, 10 February 2017

Mind, Body and School: children's mental health week.


For Children's Mental Health week my son's school is focusing on kindness. They usually focus on kindness, caring and safety so this is really an extension of that. I wanted to consider some of the other areas that aren't really covered in a 'health week' like this though.

Do we acknowledge that children have complex emotions ? I know we talk to them about being sad or happy and even frustrated. What about disappointed or overwhelmed ? I know that my children feel all of these at times. In fact with all of the adoption training we undertook I have a tendency to overthink pretty much everything. The other day Brown Bear wore multiple underpants to school and while my first thought was, 'man is that dude odd.' The second was, 'why did he do that ? Is it a sign that he is protecting himself from unwelcome attention from someone ? ' Ok, so that is an extreme, but it did cross my mind.

All this week I've been listening to interviews on the radio that have covered the topics of bullying, bereavement and similar topics. Next week me and Brown Bear will be having a recorded conversation as part of the listening project and I hope to talk to him about the emotional impact that having an adopted sibling had on him. It's not something we've spoken about really so it would be interesting to see what he says now that things appear to be less stressful than they were at first.

We don't usually talk about children's feelings in terms of stress, but it's something I've become acutely aware of. When Blue Bear came to live with us he showed signs of distress at being moved from his foster carers - as you would expect. In adoption there is a lot of talk about attachment and bonding. We talk about children experiencing loss - in his case the loss of a birth family then of a foster family. Far less is said about stress and depression. I honestly believe that children can feel depression just as much as adults do. I'm sure I did from an early age and it didn't have an explanation, much less any support for me to deal with it.

Children who face difficulties in childhood can grow adept at dealing with complex emotions. Young carers often cope with adult responsibilities and may miss out on carefree time as children. If a child has grow up with stress - either from seeing it or feeling it - they are more likely to have poor health later in life. It's not something we ask children about though is it ? When a child has an unexplained outburst the usual response is, "he's tired," "she's hungry," or "oh it's the terrible twos." We give little credance to actual emotional causes. I think this is changing, but slowly.

It's a long established idea that a healthy mind lives in a healthy body - that's why we still have PE in schools. It is just as important to maintain mental health and while there are schools that have introduced mindfulness I'm not sure it's going to take root. I hope it does. I practise stress reduction with my children and have encouraged them to do yoga since they were very young. Not for long, maybe a few minutes when we remember. They enjoy it, we make a game of it and they have no idea I'm getting them to de-stress or de-escalating their anger.

After all helping children identify how to take care of their mental well being at a young age can only be for the good can't it ?


Tuesday, 12 August 2014

Oh Captain, My Captain.

The sad news about Robin Williams' death on Monday was accompanied by talk about his 'battle with severe depression.' I didn't know him so I can't possibly know how it felt for him or how he dealt with his depression, but I'm sad for his family and for those who did know him.

It does seem that his untimely death has opened up the public conversation about depression and how to live with it. I don't say 'cope with it' as I'm not sure I, or anyone else, does, but I know that I live with it. Depression is a constant in my life and one that has taken most of my life to learn to live with. As part of the general conversation about what being depressed can be like here is my take on it. Please accept this with the proviso that we all have different ways of feeling and managing and at times 'not coping.' These are the things that help me, they may work for you, they may not. I offer them here in the spirit of openness and honesty.

Fake it to make it: 
I smile, I make nice, I meet friends, I post happy photos on Facebook and make jokes on Twitter. It's not that I'm lying about how I feel, but sometimes you just don't need sympathy or empathy or platitudes. You just want to act like it's all ok. Also, when you're around a small child all day there are few opportunities for self -reflection or being morose, so there is a kind of enforced jollity that you find yourself employing. There can be few things more heartbreaking than a toddler asking "why are you so sad Mummy ?" and not having an answer.

Keep on moving: 
I have to exercise every day. If I don't I get agitated as all the anxiety courses around my body and my ability to deal with every day life becomes fraught. The irony is - of course - that with depression can come almost crippling exhaustion so I am constantly forcing myself to go to the swimming pool or to put on trainers to go for a run or a walk. I would much rather lie down on the sofa and try and sleep, but I know that exercise acts as a dopamine hit and for a moment it feels ok. It may not last, but to not exercise is just not an option for me.

Eat well, Sleep well:
I find that I either over or under eat when I am depressed. It isn't an exact science so I can't possibly say what will help me. Some days I want to eat lots of bread others I want chocolate and some days I don't eat for hours and I'm not hungry. I know that I should eat regularly or I feel horrid and that I must drink lots of water to feel well. Instead I often spend an entire day carrying round a full bottle of unopened water and lots of fruit. Then there is the sleep issue. I can be flat out dead on my feet tired and still not sleep. Or I'll get up at an unearthly hour, feed the cat, the goldfish and then go back to bed and fall asleep again for another few hours unaware of the time. There is no 'normal' for me and I'm sure that is not unusual.

Make space: 
Just as I try and keep company and be sociable I know that sometimes I need space. This means asking for help and I don't do that very well. Whether it is asking Hubbie to take the boy out so I can have some quiet time or asking family if they can have him overnight I am only just becoming able to do this. At it's worst a few weeks ago I wanted to take myself away and out of all of it. There are times when a bit of room and nothing to do just makes it all feel different. Not necessarily better, but different and that is ok.

Know who to tell: 
There are people who can hear you be honest and those who just can't. I know who these people are. Last week I spoke for a long time to a friend who I've known for almost 25 years (yes J, it's been that long !) about how it all felt. I spent a lot of the call in tears. In the time we've been friends we've been through and talked about our: 4 marriages, 2 divorces, many miscarriages, post-natal depression, love affairs and indiscretions.

Between us we now have 4 healthy, happy children and we are totally honest with each other - to the point of being beyond embarrassment when asked anything. If I ask J to be honest with me she will be. I do the same for her. It's not easy and it means there are periods of time when we just don't talk for a while as there is a lot to process and we know the conversation will be raw and the questions will be unavoidable. Just having even one person who will not judge when you tell them about the awfulness that is you makes a world of difference.

Knowing who not to tell:
Either because they will judge, or offer unwanted advice or just not listen. I shared a house at uni with 'friends' who sat me down for a chat/intervention and one of them harangued me to tell them "what is wrong with you ?" This neither inspired me to share, nor made me feel it was safe to with such a cold and unfeeling audience. Sometimes you want to spare other people's feelings and not worry them that you can't cope. Most days are functional and fine - some are difficult and require effort. Telling some people that you feel depressed might lead them to picture a neglected infant and to over-react. No-one wants that.

It's not going anywhere: 
Trying to pretend it will all go away and not be there any more is at best a wild dream and at worst a delusion. There is nothing wrong with being depressed. It's not who you are, it's how you are feeling. I've been feeling this for nigh on 33 years and there are times when I believe that it's just part of who I am. It isn't. I can't magically make it go away, but I can do my best to manage how I live through it. It is, however, persistent and always just there waiting to make itself known. Accepting that this is real and owning it is not giving in, it is ensuring that I am able to live with it.

Feelings are ok: 
I spend an inordinate amount of time telling myself not to be angry, or upset or to 'try and be normal' - whatever that is.  Don't punish yourself for having feelings. There are times when it seems like I feel too much, or I feel everything and am not able to disassociate from what is outside my head. Hearing the news at the moment is very difficult for me as I feel angry, sad, upset, powerless and this becomes overwhelming. I'm not alone in that, but if the feelings make you want to harm yourself or others then it's time to tell someone how you feel. That's not easy, I'm not saying it is, but you have to try.

Always look on the bright side:
Ok, this one is partly tongue in cheek. I succumb to such black clouds of depression that I really can't see anything else. While on holiday the boy was having a wonderful time and watching him I appreciated how lucky we are to have him and that he is active, healthy and cheerful. I wasn't always feeling things or wanting to be involved, but I did them anyway. Maybe somewhere along the line in the future I'll have a memory that might feel positive and happy, even if I wasn't happy while it was happening. I might feel it in hindsight because the depressive moods don't remain so photos and mementoes are really valuable reminders of what happened rather than what I was feeling.



I hope that something here might help someone else. I'm not an expert, I'm just another person living with depression and willing to talk about it. 

If you would like professional support here are some links you might find useful:



Samaritans


I wish you the best of luck.